Scientific Advisory Committee

AVP-R Connect is honored to be guided by a dedicated group of physicians, researchers, and professionals who bring expertise, experience, and a shared commitment to improving the lives of individuals and families affected by arginine vasopressin resistance (AVP-R).

Our Scientific Advisory Committee helps inform our educational initiatives, research priorities, outreach, and efforts to advance awareness and understanding of this rare condition.

  • Prof. Detlef Böckenhauer, MD

    Pediatric Nephrology & Inherited Kidney Diseases
    UZ Leuven / KU Leuven, Leuven, Belgium

    Prof. Böckenhauer is a pediatric nephrologist with expertise in inherited kidney and tubular disorders. He is part of the pediatric nephrology team at UZ Leuven and the PKD Research Group at KU Leuven. His clinical and research work includes rare kidney diseases and congenital AVP-R.

  • Laura Arias

    Concierge Consultant
    Miami, Florida, USA

    Laura Arias brings professional experience in concierge services, personalized support, communication, and relationship-building. She contributes a valuable perspective on creating a responsive, connected, and family-centered experience for the AVP-R community.